It was said that Taiwan Stroke Registry (TSR) contained more than 100,000 patient data (Ref). But, was the publication numbers proportionate to the number of patients registered? Did the productivity of TSR justify the cost and efforts to register data (Ref)?
It was a problem of leadership. Researchers can't efficiently use TSR data to test their hypothesis of stroke diagnosis and management for many years.
Now, the paper by Seiffge DJ, et al (Ref) is a good example, in contrast to the case of the TSR.
I don't believe that TSR can't provide more stroke cases for researchers in Taiwan to conduct such a study, and to answer such an important clinical question.
However, the data was kept by someone in-house as his own property. A property that he can use to make others admire him. A property that he can use to order younger doctors doing whatever he want.
That's pretty sad. By doing so, he blocked the chance of Taiwan Stroke Society to become one of the important members among stroke societies worldwide.
From now on, I will make changes day by day.
A good stroke registry should play an important role in not only academic research, but also in the cycle of quality improvement.
